I heard from my Occupational Therapist a couple of days ago she said that unfortunately that they wont be able to get me a disabled mouse.. i had really been looking forward to that :( She also said that i am getting my new Electric Bed sometime next week hopefully it will help alot with the pain in my legs and also getting in and out of bed it should really make a difference. Its only going to be a single one which wont be a problem as we can put another single one next to it for my fiance so we can still sleep side by side.
I got a letter from the DLA thanking me for my appeal and telling me to expect a response from them within 11 weeks.. *sigh* i have already waited 13 weeks from the original claim + 3 weeks more this is taking forever i hope they finally bother reading my appeal this time!!
Been having alot of pain in my shoulders this is because my wheels on my wheelchair are alot smaller than they should be they are 20" and they should be 24" its taken several weeks and finally wheelchair services are going to send someone out and give me some right sized ones.
I went sailing with the Disabled Sailing Club i really enjoyed it the sailing and got to go in a "Rib" and went about 25 knots it hurt like hell to begin with but once i got used to the movement of the waves it wasnt as bad.. However i ended up with lots of bruises and needed several days of rest afterwards.. sometimes its worth doing things though and putting up with the pain :-) I will defiently be doing it again!
Havent heard from my Social Worker about the Day Centre yet but i wasnt really expecting too as i dont know how long the queue is.
Saturday, 17 October 2009
Tuesday, 6 October 2009
Busy Busy Busy
Lots of stuff going on had appointment with my Social Worker went well, she said that i had extra money left over ; enough to go to a local disabled day centre once a week if i want to.
The ********* runs a specialist day service five days a week for people suffering from disabilities. The unit is staffed by care assistants who assist in planned activities and also provide personal care.
The centre also caters for people with increasing physical needs. Activities are geared towards enhancing people's skills and offering social stimulation. These activities include:
* pottery
* art
* computers
* soft crafts
* cooking.
We also have a mobility suite where people can access equipment designed to improve physical functioning. This service is offered following an assessment by a physiotherapist.
Short-term work is being developed to help people to regain their independence and find appropriate support in the community.
Staff at the centre are supported by a group of volunteers.
Looks interesting, today i went for a look around with my carer i am very interested the computer suite looks good and also i am interested in the crafts and pottery side so i called my Social Worker and shes going to arrange for me to go there on Tuesdays it may take a few weeks to get a place. But it also means i will get out and met more people with disabilities and more people generally rather than be cooped up at home. I would have to change my going out day to fridays.
I went for a look around in my wheelchair several people there (long term wheelchair users) told me my wheels are set too far back and also the wheels are too small because i am tall so i called the NHS wheelchair company that provided me with the wheelchair and they are going to call me and hopefully change my wheels so i am waiting for a telephone call from them...
I have also been looking into different types of mice for computers as because i have been having lots of problems with my hands and also with my thumbs it has been getting harder and harder to use a mouse, i have found a few interesting ones, i have called my Occupational Therapist and asked if she can help me get one and shes going to do some research into it and see if she can help as a mouse that is disabled adapted is about £50 with vat off because its for disabled use; which is alot of money and i dont want to pay it if i dont have to!
I have also been looking into Disabled sailing there is a local sailing club that offers sailing for disabled people they have adapted equipment and boats and are able to have wheelchairs on board i am going for my first session on saturday it is the last session of the season but i am looking forward to giving it a try. It does look rather interesting. http://www.sussexsailability.org.uk/
Havent heard anything back from the DLA but didnt expect to its only been a week!! still got my appointment on friday with the district nurses.
The ********* runs a specialist day service five days a week for people suffering from disabilities. The unit is staffed by care assistants who assist in planned activities and also provide personal care.
The centre also caters for people with increasing physical needs. Activities are geared towards enhancing people's skills and offering social stimulation. These activities include:
* pottery
* art
* computers
* soft crafts
* cooking.
We also have a mobility suite where people can access equipment designed to improve physical functioning. This service is offered following an assessment by a physiotherapist.
Short-term work is being developed to help people to regain their independence and find appropriate support in the community.
Staff at the centre are supported by a group of volunteers.
Looks interesting, today i went for a look around with my carer i am very interested the computer suite looks good and also i am interested in the crafts and pottery side so i called my Social Worker and shes going to arrange for me to go there on Tuesdays it may take a few weeks to get a place. But it also means i will get out and met more people with disabilities and more people generally rather than be cooped up at home. I would have to change my going out day to fridays.
I went for a look around in my wheelchair several people there (long term wheelchair users) told me my wheels are set too far back and also the wheels are too small because i am tall so i called the NHS wheelchair company that provided me with the wheelchair and they are going to call me and hopefully change my wheels so i am waiting for a telephone call from them...
I have also been looking into different types of mice for computers as because i have been having lots of problems with my hands and also with my thumbs it has been getting harder and harder to use a mouse, i have found a few interesting ones, i have called my Occupational Therapist and asked if she can help me get one and shes going to do some research into it and see if she can help as a mouse that is disabled adapted is about £50 with vat off because its for disabled use; which is alot of money and i dont want to pay it if i dont have to!
I have also been looking into Disabled sailing there is a local sailing club that offers sailing for disabled people they have adapted equipment and boats and are able to have wheelchairs on board i am going for my first session on saturday it is the last session of the season but i am looking forward to giving it a try. It does look rather interesting. http://www.sussexsailability.org.uk/
Havent heard anything back from the DLA but didnt expect to its only been a week!! still got my appointment on friday with the district nurses.
Friday, 2 October 2009
Meetings
I had the meeting with the lady from social services the "fincial adviser" on tuesday, on the letter that the DLA has send me there was a list of reasons why i did not qualify for middle or higher rater DLA all of which we had shown on the form that i needed help with so i did qualify for it. It seemed that the people at the DLA did not even bother reading the form! This is what Mel the fincial adviser said too, i suppose it is simular to when you first apply they say no to try and say money and discourage people but i wrote several essays the first about my currrent status and also saying why i did qualify and putting in detail every single one of the things on the list. Also i wrote all about what the carers do for me in great detail. Then i photocopied a copy of my care plan, and a copy of the journal written my carers daily and also the letters i have gotten from my specialist and Occupational Therapist. Mel got all these and put these together with the appeal form she filled in and has sent them back to the Appeal proccess DLA hopefully they will bother reading it this time!!
Next week i have a couple of appointments firstly one with my proper Social Worker to talk about my current care, eg carers i am tempted to talk with her about respite to give my fiance a break and possibly see if i am entitled to go to a care centre one day a week where i can do activities so this will get me mixing me with more people and get me out of the house.
Also later in the week i have an appointment with the distrist nurses to see if i can get an electric bed, i am hoping something will happen from this as i have been finding it harder and harder to get out of bed and also been strugging with alot of pain in my legs at night time and been finding it increasingly difficult to get comfortable :-(
Unfortuantely i have to attend both appointments alone which i am not keen on. Both will be at home, my fiance is at work for both of them although technically he could attend the one with the nurses but they are in the same team as him and it would be very awkward. I hope something comes out of it this appointment has been along time waiting and also alot of referals.
Fingers crossed everything goes okay.
Next week i have a couple of appointments firstly one with my proper Social Worker to talk about my current care, eg carers i am tempted to talk with her about respite to give my fiance a break and possibly see if i am entitled to go to a care centre one day a week where i can do activities so this will get me mixing me with more people and get me out of the house.
Also later in the week i have an appointment with the distrist nurses to see if i can get an electric bed, i am hoping something will happen from this as i have been finding it harder and harder to get out of bed and also been strugging with alot of pain in my legs at night time and been finding it increasingly difficult to get comfortable :-(
Unfortuantely i have to attend both appointments alone which i am not keen on. Both will be at home, my fiance is at work for both of them although technically he could attend the one with the nurses but they are in the same team as him and it would be very awkward. I hope something comes out of it this appointment has been along time waiting and also alot of referals.
Fingers crossed everything goes okay.
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