The Fentantyl increase didnt seem to be helping much and i saw my GP on wednesday i was at the end of my tether. I have barely been sleeping because of the pain keeping me awake. Simon says i have been very ratty and arguementative; a sign he thinks that it isnt working too. My Gp didnt want to increase the dosage as so far its not doing anything and we are on 37mg patches.
So she suggested that we try something else as there are only two types of patches and the morphine ones gave me an allergic reaction and also the fentanyl ones not working she suggested trying tablets, So now i am taking Morphine Sulphate Tablets 10MG twice a day.
Shes also refered me to the Pain Clinic at the local hospital and also re-refered me to Physio. The Rhemotologist refered me several months ago and dont know what has happened so shes refered me again.
Still havent heard anything about the Disability Living Allowance its been just over two months now.
Friday, 29 August 2008
Saturday, 16 August 2008
One less consultant..
Things have been a little crazy, the Fentanyl doesnt seem to be doing all that much as my normal Gp who knows all about "Me" and my "Fibro" is on holiday and none of the doctors at the local surgery want to do much. I been given morphine tablets to try and help the pain but they are turning me into a zombie and i feel like i am trapped in my own little world. Once again i am waking up in the nights crying and moaning from the pain that the Fibromyalgia is causing.
Simons been out most of the week helping run a holiday club, before i became ill this is something i used to do i went along on the first morning the "setting up morning" and couldnt do anything useful, i couldnt hold scissors, hold a pen to write, draw a picture or help decorate the hall i got rather depressed.
Eventually a doctor at the surgery put the Fentanyl patch a little but i have to wait till the 27th of August to see my own doctor, seems like a long holiday! although in reality its only about 4 weeks but thats along time when your in pain!
Saw my neurologist a few days ago about the medications i am on and how i am generally doing, she agreed that i should try to come off of the Topirate medication, we are not sure if it actually having any effect anyway. I am on 200mg at the moment if i come down to 0 by the beginning of October it will be in time to see Doctor Hepburn my Rhemotologist and he said that it would be a good idea to try me on Gavapentin or Pregablin both are medications that help muscle and joint pain, alot of people at the fibromyalgia support group are on one or the other of these so i am hopeful. The problem was Topiramate reacts with them so this problem will be solved.
Also the Neurologist said as we have a proper diagnosis now and also that i had to travel all the way to Southlands hospital (which is quite a distance) to go see her, that the diagnosis is not actually related to anything Neurological and she thought it would be a good idea to discharge me from the Neurology team. I was put under the Neurology team originally when i was admitted to Worthing Hospital when i presented with my very first symptoms which were severe headpain, vision problems etc.
So it looks like my Fibromyalgia care is now in the Rhemologist Doctor Hepburn's hands except for some other symptoms etc bladder problems, sleep issues etc which are in the appropriate department hands.
Simons been out most of the week helping run a holiday club, before i became ill this is something i used to do i went along on the first morning the "setting up morning" and couldnt do anything useful, i couldnt hold scissors, hold a pen to write, draw a picture or help decorate the hall i got rather depressed.
Eventually a doctor at the surgery put the Fentanyl patch a little but i have to wait till the 27th of August to see my own doctor, seems like a long holiday! although in reality its only about 4 weeks but thats along time when your in pain!
Saw my neurologist a few days ago about the medications i am on and how i am generally doing, she agreed that i should try to come off of the Topirate medication, we are not sure if it actually having any effect anyway. I am on 200mg at the moment if i come down to 0 by the beginning of October it will be in time to see Doctor Hepburn my Rhemotologist and he said that it would be a good idea to try me on Gavapentin or Pregablin both are medications that help muscle and joint pain, alot of people at the fibromyalgia support group are on one or the other of these so i am hopeful. The problem was Topiramate reacts with them so this problem will be solved.
Also the Neurologist said as we have a proper diagnosis now and also that i had to travel all the way to Southlands hospital (which is quite a distance) to go see her, that the diagnosis is not actually related to anything Neurological and she thought it would be a good idea to discharge me from the Neurology team. I was put under the Neurology team originally when i was admitted to Worthing Hospital when i presented with my very first symptoms which were severe headpain, vision problems etc.
So it looks like my Fibromyalgia care is now in the Rhemologist Doctor Hepburn's hands except for some other symptoms etc bladder problems, sleep issues etc which are in the appropriate department hands.
Saturday, 2 August 2008
Morphine Problems
I have been getting very aggrovated recently; snapping at the smallest thing it didnt even occur to me that it could be that the morphine patch could not be working as well.
I have been in more pain recently, the stairs are taking a little longer to climb, small tasks i was able to do are taking at least twice as long but it hadnt clicked. Well not until Friday. Tuesdays are the day i put my Morphine 7 day patch onto my arm it sticks on my arm like a nicotine style patch giving morphine through the skin but this time it starting itching within a very short period of time. Then the itching started turning to a burning sensation.
Friday morning i took the patch off because it was such hot weather, underneath the patch was a very bad very red and sore looking burn that had started to blister and bubble under the skin and was turning a little yellow and was oozing. Obviously if this was happening to the skin then the morphine wasnt getting through leaving me in pain.
Very early friday after i called to make an appointment at the doctors and showed him my arm he said that i was badly allergic to the glue in the morphine patch and said that i would not be able to take the morphine patch but the prescribed me fentanyl 25 patches ( he told me the glue was different)told me to take these for 2 weeks and then contact him if these were not strong enough and to get some more after the 2 weeks if there were. So we got home and put the new patch on my arm.
I did not sleep very well that night and eventually fell asleep around 6am i suppose the Morphine had worn off but yet the Fentynl hadnt kicked in yet as that takes a while. Then i fell asleep right through to about 7pm the following eventually sleeping for 13 hours i am not sure how i feel now i know i am in less pain but i feel kinda floaty and not really here. We tried to secure the new fentanyl patch on ( which is a small stamp sized clear patch) with some plaster only to find that i had become allergic to the plaster too! not having a good time!
Hope i feel better soon its my birthday tomorrow.
I have been in more pain recently, the stairs are taking a little longer to climb, small tasks i was able to do are taking at least twice as long but it hadnt clicked. Well not until Friday. Tuesdays are the day i put my Morphine 7 day patch onto my arm it sticks on my arm like a nicotine style patch giving morphine through the skin but this time it starting itching within a very short period of time. Then the itching started turning to a burning sensation.
Friday morning i took the patch off because it was such hot weather, underneath the patch was a very bad very red and sore looking burn that had started to blister and bubble under the skin and was turning a little yellow and was oozing. Obviously if this was happening to the skin then the morphine wasnt getting through leaving me in pain.
Very early friday after i called to make an appointment at the doctors and showed him my arm he said that i was badly allergic to the glue in the morphine patch and said that i would not be able to take the morphine patch but the prescribed me fentanyl 25 patches ( he told me the glue was different)told me to take these for 2 weeks and then contact him if these were not strong enough and to get some more after the 2 weeks if there were. So we got home and put the new patch on my arm.
I did not sleep very well that night and eventually fell asleep around 6am i suppose the Morphine had worn off but yet the Fentynl hadnt kicked in yet as that takes a while. Then i fell asleep right through to about 7pm the following eventually sleeping for 13 hours i am not sure how i feel now i know i am in less pain but i feel kinda floaty and not really here. We tried to secure the new fentanyl patch on ( which is a small stamp sized clear patch) with some plaster only to find that i had become allergic to the plaster too! not having a good time!
Hope i feel better soon its my birthday tomorrow.
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