Just a quick post, i had a letter this morning from "Anchor Staying Put saying that the council had assessed us and they they will not pay anything towards our new bathroom, for them to pay ANYTHING we would have to pay £36k of work, which when the bathroom is only £5k isnt likely we are going to get help! we were told that we were going to have to pay some but we werent told that they would refuse altogether. The reason is because Simon works. Apparently they may pay a very small amount towards it IF i get higher rate care but we will have to see what i get awarded first.
They have only taken into account the figure Simon earns, not how much rent we pay, or the mortgage, or bills which is unfair. I have spoken to my Occupational Therapist who also thinks it is disgusting as it is a need rather than a want and she is going to look into it and see if there are any charities that may be able to pay or help towards it.
I also had a letter from the rhemotologist with the results from my hand tests (which i previously know didnt show carpal tunnel syndrome) my Rhemotologist advises me that i am suffering from Neuropathy in my hands (http://en.wikipedia.org/wiki/Neuropathy) which is a disorder of the nerves; which is linked to the fibro. I called the Rhemotologist today to make an appointment as i havent seen him since march.
I have also been suffering from toothache in quite a few of my teeth, i know that maxiofacial pain is common with fibro this is very painful. My dentist did some xrays and nothing has shown up but on two of the top teeth he is going to do some root treatment to block the pain as it is very bad. However the appointment is not until Septemeber as he is off for the summer holidays, i dont know if i can wait that long.
The carers are going very well, i am enjoying going out and having some cleaning done is meaning that there is alot less stress for my fiance.
No news back from the DLA Yet but it was unlikely their would be any back this soon!
Tuesday, 14 July 2009
Thursday, 2 July 2009
Had a few appointments this week, first one was my Doctors, but nothing new there.. just a monthly checkup to see how i am doing and a prescription for meds for the next month. I do have to have my blood taken next month to see how my Vitamin D levels are doing and also to see how my Thyroid levels are.. not really looking forward to that seeing though it took three peoples attempts last time to finally get blood from me.. damn why are my veins so awkward!!
I also had an appointment with "Anchor Staying Put" which are a company employed by the council to help with the bathroom being converted into a wetroom, a lady came around to take all our financial details and fill in lots of paperwork for the grant. However as my fiance works works its highly possible we may have to put some money towards the bathroom. I am worried about this as we dont have any savings and all my benefits and my fiances wages are spent each month on bills, food rent etc. We dont get any discounts on council tax and my fiance doesnt get any Carers allowance because he works. The lady did say it is possible to pay in installments and if we do have big problems that it is possible to look for charities to help us.. i am very worried about this and how much we may have to pay towards this.
It is not really our choice to have the bathroom amended as it is a health need as i can not use the bath anymore and its really difficult to use the shower which is above the bath and to use it i have to climb into the bath which again is really difficult; even with a bathseat. Apparently the average Wetroom costs about £5000 to be installed.. i will be worrying about the cost of it until we find out which could be a few weeks!
I had my appointment with 'Wheelchair Services' yesterday which was interesting i was all measured up for the wheelchair and they told me it would be delivered in a few weeks, i am really surprised how fast it is all going to be sorted. Its black so its not a interesting colour or anything and its self propelling, it collapses down so it can be folded up into the car. Its for use outside when we go down town etc as i can not walk for more than a few minutes and walking seems to be getting harder all the time and i seem to be falling alot more. I fell badly a few weeks ago down the stairs to our flat and ended up in bed for a week; the fall caused great problems with my fibromyalgia as well as injures from the fall itself.
My Occupational Therapist called the "Falls Preventation Team" last week as i hadnt heard from them in a little while only to hear that they had discharge me.. it was very nice of them to tell me! i must say i am pretty unimpressed with both them and the physiotherapists.. i saw the physios twice.. two different people before they said they cant help me, and i only actually saw the "Falls Prevention Team" once and they didnt tell me i had been discharged.. especially as i had to wait about 7 months on a waiting list for physio!
So things are continuing to move forward.
I also had an appointment with "Anchor Staying Put" which are a company employed by the council to help with the bathroom being converted into a wetroom, a lady came around to take all our financial details and fill in lots of paperwork for the grant. However as my fiance works works its highly possible we may have to put some money towards the bathroom. I am worried about this as we dont have any savings and all my benefits and my fiances wages are spent each month on bills, food rent etc. We dont get any discounts on council tax and my fiance doesnt get any Carers allowance because he works. The lady did say it is possible to pay in installments and if we do have big problems that it is possible to look for charities to help us.. i am very worried about this and how much we may have to pay towards this.
It is not really our choice to have the bathroom amended as it is a health need as i can not use the bath anymore and its really difficult to use the shower which is above the bath and to use it i have to climb into the bath which again is really difficult; even with a bathseat. Apparently the average Wetroom costs about £5000 to be installed.. i will be worrying about the cost of it until we find out which could be a few weeks!
I had my appointment with 'Wheelchair Services' yesterday which was interesting i was all measured up for the wheelchair and they told me it would be delivered in a few weeks, i am really surprised how fast it is all going to be sorted. Its black so its not a interesting colour or anything and its self propelling, it collapses down so it can be folded up into the car. Its for use outside when we go down town etc as i can not walk for more than a few minutes and walking seems to be getting harder all the time and i seem to be falling alot more. I fell badly a few weeks ago down the stairs to our flat and ended up in bed for a week; the fall caused great problems with my fibromyalgia as well as injures from the fall itself.
My Occupational Therapist called the "Falls Preventation Team" last week as i hadnt heard from them in a little while only to hear that they had discharge me.. it was very nice of them to tell me! i must say i am pretty unimpressed with both them and the physiotherapists.. i saw the physios twice.. two different people before they said they cant help me, and i only actually saw the "Falls Prevention Team" once and they didnt tell me i had been discharged.. especially as i had to wait about 7 months on a waiting list for physio!
So things are continuing to move forward.
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