My "Social worker/financial advicer called i have an appointment called i have an appointment tuesday. I have been very busy the past few days getting stuff together for an appeal.
There reasons on the letter to me that i cant get a higher rate (middle rate or higer) are apparently because apparently i dont need -someone to help manage my toilet needs, get up and down the stairs, get in and up a chair, move about indoors, communicate, take part in social acitivites. I do need help with most of these things the problem is there is some person in an office who thinks they know me from a couple of words and i been working hard putting stuff together to try and help them understand me... i have written a document all ab out me which explains my condition, what stage i am in etc and also saying and explaining why i need help with the above things, i have included letters from my specialist, also my occupational therapist, a copy of my care plan and also a copy of my "diary" which is actually a book which my carers fill in stating tasks they help me with every day when they are here.. hopefully that will help. I have also written a document which explains in my own words what the carer helps me with; thought this might help. Now to let the lady on tuesday see and then send it off and probally wait another 11 weeks for a descision and if they say no it goes to a hearing which i have to attend.
I know alot of people who are no where near as bad as me.. who recieve no where near as much help as me who recieve higher Disability Benefit... Geez i know people who arent even "sick" who recieve it.. the system is corrupt... I am actually sick and therefore i cant get the correct level... shock.. they must save money!! Go Figure!
Thursday, 24 September 2009
Sunday, 20 September 2009
Got DLA letter *sigh*
Saturday i got my DLA letter, apparently the DLA people dont think that i have gotten any worse and that i dont require my Low care upping to Medium, even though i have alot of help via carers and there is little i can do looking after myself i cant wash myself, dress myself, i cant brush myself, i cant do my own food, i cant hardly cut my own food up... there are lots of other things i cant do and the list seems to be growing every week but non of this seems to matter. Well i am going to be appealing i am sure my social worker is going to contact me soon as she helped me fill in the form and then she will tell me where to go from there. Oh life is so much fun.
I have kidney infection atm apparently from the catheterizing but its giving me quite a fever and has bed bound me for almost a week, i am usually in bed alot because of the pain if i sit up too long.
Doctor has given me some new cream to try on my joints with Voltarol in it, seems to be helping a little with the pain but is only short lived.
Been going out in the wheelchair, our appartment is very small and its difficult to get the wheelchair down the stairs, its also a little heavy to push so only my fiance can push it, i tire easily as i havent built up the strength to push myself also my hands and arms arent that good anyway what with the neuropathy. We are going to try and go for a walk in it at least once a week and use it as often as i can eg when going down town but its a little hard with my fiance working so much.
We have put in an application to move into a council disabled property as the stairs are getting harder and harder to walk up and down it may take along time to get a property and then we dont know whats going to happen with this property once we have the new one as we have a small share in this appartment, it could take a year or more to get a disabled property but we have provided evidence from my specialist and doctor, also my occupational therapist wrote a very good letter to the council explaining that our current appartment isnt any good for my needs as i cant use the bath and also cant use the wheelchair inside, also the stairs etc and several other things, we are currently waiting to hear whats going on.
Got an appointment tuesday for my next vitamin D injection, hopefully that will work this is 300,000 ui like the last one hopefully my body will aborb some of this one! getting a little fed up with the whole vitamin D problem, getting a little fed up of all the problems at the moment to be honest.
I have kidney infection atm apparently from the catheterizing but its giving me quite a fever and has bed bound me for almost a week, i am usually in bed alot because of the pain if i sit up too long.
Doctor has given me some new cream to try on my joints with Voltarol in it, seems to be helping a little with the pain but is only short lived.
Been going out in the wheelchair, our appartment is very small and its difficult to get the wheelchair down the stairs, its also a little heavy to push so only my fiance can push it, i tire easily as i havent built up the strength to push myself also my hands and arms arent that good anyway what with the neuropathy. We are going to try and go for a walk in it at least once a week and use it as often as i can eg when going down town but its a little hard with my fiance working so much.
We have put in an application to move into a council disabled property as the stairs are getting harder and harder to walk up and down it may take along time to get a property and then we dont know whats going to happen with this property once we have the new one as we have a small share in this appartment, it could take a year or more to get a disabled property but we have provided evidence from my specialist and doctor, also my occupational therapist wrote a very good letter to the council explaining that our current appartment isnt any good for my needs as i cant use the bath and also cant use the wheelchair inside, also the stairs etc and several other things, we are currently waiting to hear whats going on.
Got an appointment tuesday for my next vitamin D injection, hopefully that will work this is 300,000 ui like the last one hopefully my body will aborb some of this one! getting a little fed up with the whole vitamin D problem, getting a little fed up of all the problems at the moment to be honest.
Subscribe to:
Posts (Atom)