Not much to say.. but i wanted to write this, the pain is getting worse mainly in my legs the back of the top of my legs, the back of the bottom of my legs. A little in the front of the top and bottom of my legs. The pain is getting so much worse and it feels so tight and excrutating more than i have ever felt before in my legs it. It is there day and night whether i stand or sit or lay down and makes me cry in pain. It started before the Gabapentin so it is not because of that.
I feel like i cant cope with it but i am trying my best to because there is no alternative i am taking my daily morphine morning and night as well as extra morphine as i am allowed to but it is not enough to take away the pain. I hope that this is not going to ruin my christmas to much :-(
I want to see my doctor but i dont think there is much they can do and i think they will blame the Gabapentin and take me off of it and i really want to see if it works i may just have to put up with this pain for the month and a half or so till the Gabapentin kicks in if my sanity can cope that long!
Tuesday, 23 December 2008
Saturday, 20 December 2008
Trip to the doctors
The doctor put me on Gabapentin Yay at last! I have done some research on wikipedia
http://en.wikipedia.org/wiki/Gabapentin (In 2002, an indication was added for treating postherpetic neuralgia (neuropathic pain following shingles, other painful neuropathies, and nerve related pain).[4]
has been found to be effective in prevention of frequent migraine headaches,[5] neuropathic pain[6]) so it looks like as well as helping my muscle pain it may well help my migraines which i didnt realise which is really good!! of course there is a possiblity it may not work at all as every drug does not work with every person but i can be hopeful, If i could cross my fingers i would!! I will be on a relatively high dosage of 900mg which will start at 300mg and go up over 3weeks, the only slightly annoying thing is that i will have to take 1 tablet 3 times a day.
Also my doctor agreed to write a letter to our housing officer re the marking of a disabled parking space which is really good and she signed the free prescription letter the FP92A meaning i no longer have to pay for my prescriptions for the mean time.
So all in all it was a very good doctors visit.
http://en.wikipedia.org/wiki/Gabapentin (In 2002, an indication was added for treating postherpetic neuralgia (neuropathic pain following shingles, other painful neuropathies, and nerve related pain).[4]
has been found to be effective in prevention of frequent migraine headaches,[5] neuropathic pain[6]) so it looks like as well as helping my muscle pain it may well help my migraines which i didnt realise which is really good!! of course there is a possiblity it may not work at all as every drug does not work with every person but i can be hopeful, If i could cross my fingers i would!! I will be on a relatively high dosage of 900mg which will start at 300mg and go up over 3weeks, the only slightly annoying thing is that i will have to take 1 tablet 3 times a day.
Also my doctor agreed to write a letter to our housing officer re the marking of a disabled parking space which is really good and she signed the free prescription letter the FP92A meaning i no longer have to pay for my prescriptions for the mean time.
So all in all it was a very good doctors visit.
Wednesday, 17 December 2008
So much happening.. so much pain
I have had the dreaded cold/flu bug like most people so have been quite sick, i ended up with a chest infection and it also effected most of my glands. The general cold sickness part of it seems to have gone now. However with fibro it seems to take alot longer to get over the general germ.
I have been sleeping alot more recently and noticing that doing the slightest thing has made me tired and that i am having to rest and sleep afterwards i dont know whether this is because of the cold i had or whether my fibromyalgia is worsening in this area.
I have also noticed that my memory is getting much worse i am struggling to remember the date, times, special occasions, my memory used to be something that i took for granted but now its getting much harder to remember things. I must admit this is scaring me alot probally because of how good it used to be.
My general condition seems to be going downhill i seem to be getting shakey and wobbley when i walk with my legs and my arms i find it more difficult to steady myself and i am falling more often but being proud i dont tell people unless i have to or unless they are there.
We have gotten a few things in motion in the past few days, we have been to a local shop and have bought a few items,special knife, fork, spoons, also a raising desk thingy, a grabber, and a few other items that will make things a little easier around the flat for me.
We have also contacted the local Occupational Therapist and they have arranged for some items to be sent out; a special seat for the bath, a perching stool, a surround for the toilet to help me stand up, some raisers for a chair i sit on in the lounge and a few other items. The Occupational Therapist will be coming out but there is a waiting list of about 4-6 months but the items should arrive just before or just after christmas.
I have also been in contact with the company which manage the block of flats as every person who has a flat here also has a allocated parking space, ours is right next to the front door. However no one seems to park in their correct space and we usually end up having to park quite far away from the front door which is quite unfair especially as i am on crutches and have walking difficulty. I spoke to them and advised them that i was now registered disabled, apparently if i can get a 'note' from my GP i can get a disabled logo put on our space.. why i need a note i am not sure.. as i sent them a copy of my DLA letter which shows i am disabled and can not walk far.. i just think they are making me just do more work. I am seeing my GP later today and will ask her if she will write a letter re it.
I have also looked into prescriptions and the FP92A and think that i will be valid for free prescriptions under the fact that i can not go anywhere without a carer ( http://www.silverdalemedicalcentre.nhs.uk/scripts/gp_cms/document_uploads/Certificates/FP92Amedical%20exemption.pdf ) shows the form
I have also recieved my disabled 'Blue Badge' which was amazingly fast via post only two days! and also a bus pass i dont know how often i will use this but it may come in handy.. and apparently my carer cinema pass will be with us shortly..
Also need to discuss with my GP about going on the new Gabapentin as i really am suffering at the moment with pain in my joints and muscles. The pain in my head is increasing as the amitriptaline is being reduced but something really needs to be done i dont want to be in this much pain over christmas i feel like the pain is driving me crazy and i am fed up being stuck in bed.
I have to keep switching between sitting up and laying down so being in bed is the only sensible idea when my fiance is at work.
The hydro pool is all sorted out again so was back at hydro but havent been for a few weeks due to the cold/flu/chest infection but hopefully will be back next week!! all these breaks.. will get my 6 sessions! i have two sessions left i think.
Feeling a little isolated at the moment havent been outside much due to being ill and being in pain and being so tired and sleepy
I have been sleeping alot more recently and noticing that doing the slightest thing has made me tired and that i am having to rest and sleep afterwards i dont know whether this is because of the cold i had or whether my fibromyalgia is worsening in this area.
I have also noticed that my memory is getting much worse i am struggling to remember the date, times, special occasions, my memory used to be something that i took for granted but now its getting much harder to remember things. I must admit this is scaring me alot probally because of how good it used to be.
My general condition seems to be going downhill i seem to be getting shakey and wobbley when i walk with my legs and my arms i find it more difficult to steady myself and i am falling more often but being proud i dont tell people unless i have to or unless they are there.
We have gotten a few things in motion in the past few days, we have been to a local shop and have bought a few items,special knife, fork, spoons, also a raising desk thingy, a grabber, and a few other items that will make things a little easier around the flat for me.
We have also contacted the local Occupational Therapist and they have arranged for some items to be sent out; a special seat for the bath, a perching stool, a surround for the toilet to help me stand up, some raisers for a chair i sit on in the lounge and a few other items. The Occupational Therapist will be coming out but there is a waiting list of about 4-6 months but the items should arrive just before or just after christmas.
I have also been in contact with the company which manage the block of flats as every person who has a flat here also has a allocated parking space, ours is right next to the front door. However no one seems to park in their correct space and we usually end up having to park quite far away from the front door which is quite unfair especially as i am on crutches and have walking difficulty. I spoke to them and advised them that i was now registered disabled, apparently if i can get a 'note' from my GP i can get a disabled logo put on our space.. why i need a note i am not sure.. as i sent them a copy of my DLA letter which shows i am disabled and can not walk far.. i just think they are making me just do more work. I am seeing my GP later today and will ask her if she will write a letter re it.
I have also looked into prescriptions and the FP92A and think that i will be valid for free prescriptions under the fact that i can not go anywhere without a carer ( http://www.silverdalemedicalcentre.nhs.uk/scripts/gp_cms/document_uploads/Certificates/FP92Amedical%20exemption.pdf ) shows the form
I have also recieved my disabled 'Blue Badge' which was amazingly fast via post only two days! and also a bus pass i dont know how often i will use this but it may come in handy.. and apparently my carer cinema pass will be with us shortly..
Also need to discuss with my GP about going on the new Gabapentin as i really am suffering at the moment with pain in my joints and muscles. The pain in my head is increasing as the amitriptaline is being reduced but something really needs to be done i dont want to be in this much pain over christmas i feel like the pain is driving me crazy and i am fed up being stuck in bed.
I have to keep switching between sitting up and laying down so being in bed is the only sensible idea when my fiance is at work.
The hydro pool is all sorted out again so was back at hydro but havent been for a few weeks due to the cold/flu/chest infection but hopefully will be back next week!! all these breaks.. will get my 6 sessions! i have two sessions left i think.
Feeling a little isolated at the moment havent been outside much due to being ill and being in pain and being so tired and sleepy
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