A few things have been going on and havent...
I still havent heard from the DLA about my claim although i had a letter apologising that it is taking so long; i dont know if that is a good sign or a bad sign but i am keeping my fingers crossed i really hope its going to be good news i dont see why they cant give me middle rate care. Should hear soon i called the DLA and they said i should hear in the few weeks. Fingers crossed!
I finally got my wheelchair last tuesday, i had to call to chase it up and they finally called to say they were going to deliver it on the tuesday before mid day and then about 11.30 they called to say they couldnt deliver it. I was really unhappy and called back and managed to get them to deliver it as there excuse was that they couldnt pick it up and they were sure when they were going to be able to deliver it again.. well my fiance was off work last tuesday and he needed to be home when it was being delivered to see how to put it together and also to bring it up the stairs and it he wasnt going to be off work for another week and i wasnt going to wait another week for the wheelchair! I have been out in it twice now my fiance has pushed me for long "walks" in it so at least i am getting out a bit more.
I had my last blood results through and my Vitamin D levels are even lower than before the vitamin D injection.. i cant work that out at all neither can the General Doctor.. Before i had my Vitamin D injection my Vitamin D count was 59 and now 2 months after the injection its 35! which is crazy my General doctor wants me to have another injection so she has written me a prescription for it and i have to go see the nurse to have that in the next week or so *sighes*
We are thinking about moving house as the stairs getting to our flat are getting harder.. my fiance has been looking into it and i have spoken to my Occupational Therapist who is going to write a letter which should help, hopefully we can get a ground floor flat or somewhere with a lift we shouldnt have bought this flat really but we didnt know i was going to get worse so fast! Also we have to try and sell this fast which with the credit crunch could be fun.. dont know where life is going..
Saturday, 29 August 2009
Monday, 3 August 2009
Still waiting for a response from the DLA about my claim so we can see whats happening about the bathroom (Showers are getting more and more difficult climbing in and out of the bath). Also apparently my OT has contacted my General Doctor and the Local Nurses about the bed situation so we should hear something soon, the doctor confirmed that she has recieved the letter but nothing has happened yet.. its possible there is a queue like everything else with the NHS.
I had a letter from my Rhemotologist saying that the problem with my hands is called Neuropathy (http://en.wikipedia.org/wiki/Neuropathy) after all the tests i had a few months ago (the Electro Nerve test etc) The Neuropathy is the reason why i have had all the tingling in my hands and also why my thumbs and little fingers on both my hands have gone numb so that i cant move them properally and why they wont move when i ask them too.
I had some blood tests taken last monday for my thyroid, also my Vitamin D and calcium and some other things. I went to the Rhemotologist today; on my birthday which was quite interesting. Apparently my thyroid levels have stablised now with the medication set at 75mg.
The Rhemotologist said there is several new medications from the USA that have been proven to work with Fibromyalgia that he thinks could help me but he thinks we should wait till my Vitamin D stabilise first. He was quite concerned about my hands and how that they are getting worse; he has refered me to a OT therapist also a hand specialist and told me i have to wear splints on both hands in the evenings and at nights and to see if that helps.
Carers are going well, i went out to the cinema with Liz my morning carer last week and hopefully will be going to the cinema this week my usual lunchtime carer Sue has been in hospital for the past two weeks so i have had random carers most days which i have found rather frustrating and the lunchtimes have varied quite a bit.
My Wheelchair hasnt arrived yet, it is suppost to arrive within 4-6 weeks this week is week 5 so it should be here soon, hopefully it will arrive soon so that i can enjoy going out for some of the summer!
I had a letter from my Rhemotologist saying that the problem with my hands is called Neuropathy (http://en.wikipedia.org/wiki/Neuropathy) after all the tests i had a few months ago (the Electro Nerve test etc) The Neuropathy is the reason why i have had all the tingling in my hands and also why my thumbs and little fingers on both my hands have gone numb so that i cant move them properally and why they wont move when i ask them too.
I had some blood tests taken last monday for my thyroid, also my Vitamin D and calcium and some other things. I went to the Rhemotologist today; on my birthday which was quite interesting. Apparently my thyroid levels have stablised now with the medication set at 75mg.
The Rhemotologist said there is several new medications from the USA that have been proven to work with Fibromyalgia that he thinks could help me but he thinks we should wait till my Vitamin D stabilise first. He was quite concerned about my hands and how that they are getting worse; he has refered me to a OT therapist also a hand specialist and told me i have to wear splints on both hands in the evenings and at nights and to see if that helps.
Carers are going well, i went out to the cinema with Liz my morning carer last week and hopefully will be going to the cinema this week my usual lunchtime carer Sue has been in hospital for the past two weeks so i have had random carers most days which i have found rather frustrating and the lunchtimes have varied quite a bit.
My Wheelchair hasnt arrived yet, it is suppost to arrive within 4-6 weeks this week is week 5 so it should be here soon, hopefully it will arrive soon so that i can enjoy going out for some of the summer!
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