Still waiting for a response from the DLA about my claim so we can see whats happening about the bathroom (Showers are getting more and more difficult climbing in and out of the bath). Also apparently my OT has contacted my General Doctor and the Local Nurses about the bed situation so we should hear something soon, the doctor confirmed that she has recieved the letter but nothing has happened yet.. its possible there is a queue like everything else with the NHS.
I had a letter from my Rhemotologist saying that the problem with my hands is called Neuropathy (http://en.wikipedia.org/wiki/Neuropathy) after all the tests i had a few months ago (the Electro Nerve test etc) The Neuropathy is the reason why i have had all the tingling in my hands and also why my thumbs and little fingers on both my hands have gone numb so that i cant move them properally and why they wont move when i ask them too.
I had some blood tests taken last monday for my thyroid, also my Vitamin D and calcium and some other things. I went to the Rhemotologist today; on my birthday which was quite interesting. Apparently my thyroid levels have stablised now with the medication set at 75mg.
The Rhemotologist said there is several new medications from the USA that have been proven to work with Fibromyalgia that he thinks could help me but he thinks we should wait till my Vitamin D stabilise first. He was quite concerned about my hands and how that they are getting worse; he has refered me to a OT therapist also a hand specialist and told me i have to wear splints on both hands in the evenings and at nights and to see if that helps.
Carers are going well, i went out to the cinema with Liz my morning carer last week and hopefully will be going to the cinema this week my usual lunchtime carer Sue has been in hospital for the past two weeks so i have had random carers most days which i have found rather frustrating and the lunchtimes have varied quite a bit.
My Wheelchair hasnt arrived yet, it is suppost to arrive within 4-6 weeks this week is week 5 so it should be here soon, hopefully it will arrive soon so that i can enjoy going out for some of the summer!
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