Grrrrr

Just a quick post, i had a letter this morning from "Anchor Staying Put saying that the council had assessed us and they they will not pay anything towards our new bathroom, for them to pay ANYTHING we would have to pay £36k of work, which when the bathroom is only £5k isnt likely we are going to get help! we were told that we were going to have to pay some but we werent told that they would refuse altogether. The reason is because Simon works. Apparently they may pay a very small amount towards it IF i get higher rate care but we will have to see what i get awarded first.

They have only taken into account the figure Simon earns, not how much rent we pay, or the mortgage, or bills which is unfair. I have spoken to my Occupational Therapist who also thinks it is disgusting as it is a need rather than a want and she is going to look into it and see if there are any charities that may be able to pay or help towards it.

I also had a letter from the rhemotologist with the results from my hand tests (which i previously know didnt show carpal tunnel syndrome) my Rhemotologist advises me that i am suffering from Neuropathy in my hands (http://en.wikipedia.org/wiki/Neuropathy) which is a disorder of the nerves; which is linked to the fibro. I called the Rhemotologist today to make an appointment as i havent seen him since march.

I have also been suffering from toothache in quite a few of my teeth, i know that maxiofacial pain is common with fibro this is very painful. My dentist did some xrays and nothing has shown up but on two of the top teeth he is going to do some root treatment to block the pain as it is very bad. However the appointment is not until Septemeber as he is off for the summer holidays, i dont know if i can wait that long.

The carers are going very well, i am enjoying going out and having some cleaning done is meaning that there is alot less stress for my fiance.

No news back from the DLA Yet but it was unlikely their would be any back this soon!