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Sunday, 20 September 2009

Got DLA letter *sigh*

Saturday i got my DLA letter, apparently the DLA people dont think that i have gotten any worse and that i dont require my Low care upping to Medium, even though i have alot of help via carers and there is little i can do looking after myself i cant wash myself, dress myself, i cant brush myself, i cant do my own food, i cant hardly cut my own food up... there are lots of other things i cant do and the list seems to be growing every week but non of this seems to matter. Well i am going to be appealing i am sure my social worker is going to contact me soon as she helped me fill in the form and then she will tell me where to go from there. Oh life is so much fun.

I have kidney infection atm apparently from the catheterizing but its giving me quite a fever and has bed bound me for almost a week, i am usually in bed alot because of the pain if i sit up too long.

Doctor has given me some new cream to try on my joints with Voltarol in it, seems to be helping a little with the pain but is only short lived.

Been going out in the wheelchair, our appartment is very small and its difficult to get the wheelchair down the stairs, its also a little heavy to push so only my fiance can push it, i tire easily as i havent built up the strength to push myself also my hands and arms arent that good anyway what with the neuropathy. We are going to try and go for a walk in it at least once a week and use it as often as i can eg when going down town but its a little hard with my fiance working so much.

We have put in an application to move into a council disabled property as the stairs are getting harder and harder to walk up and down it may take along time to get a property and then we dont know whats going to happen with this property once we have the new one as we have a small share in this appartment, it could take a year or more to get a disabled property but we have provided evidence from my specialist and doctor, also my occupational therapist wrote a very good letter to the council explaining that our current appartment isnt any good for my needs as i cant use the bath and also cant use the wheelchair inside, also the stairs etc and several other things, we are currently waiting to hear whats going on.

Got an appointment tuesday for my next vitamin D injection, hopefully that will work this is 300,000 ui like the last one hopefully my body will aborb some of this one! getting a little fed up with the whole vitamin D problem, getting a little fed up of all the problems at the moment to be honest.

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