One less consultant..

Things have been a little crazy, the Fentanyl doesnt seem to be doing all that much as my normal Gp who knows all about "Me" and my "Fibro" is on holiday and none of the doctors at the local surgery want to do much. I been given morphine tablets to try and help the pain but they are turning me into a zombie and i feel like i am trapped in my own little world. Once again i am waking up in the nights crying and moaning from the pain that the Fibromyalgia is causing.

Simons been out most of the week helping run a holiday club, before i became ill this is something i used to do i went along on the first morning the "setting up morning" and couldnt do anything useful, i couldnt hold scissors, hold a pen to write, draw a picture or help decorate the hall i got rather depressed.

Eventually a doctor at the surgery put the Fentanyl patch a little but i have to wait till the 27th of August to see my own doctor, seems like a long holiday! although in reality its only about 4 weeks but thats along time when your in pain!

Saw my neurologist a few days ago about the medications i am on and how i am generally doing, she agreed that i should try to come off of the Topirate medication, we are not sure if it actually having any effect anyway. I am on 200mg at the moment if i come down to 0 by the beginning of October it will be in time to see Doctor Hepburn my Rhemotologist and he said that it would be a good idea to try me on Gavapentin or Pregablin both are medications that help muscle and joint pain, alot of people at the fibromyalgia support group are on one or the other of these so i am hopeful. The problem was Topiramate reacts with them so this problem will be solved.

Also the Neurologist said as we have a proper diagnosis now and also that i had to travel all the way to Southlands hospital (which is quite a distance) to go see her, that the diagnosis is not actually related to anything Neurological and she thought it would be a good idea to discharge me from the Neurology team. I was put under the Neurology team originally when i was admitted to Worthing Hospital when i presented with my very first symptoms which were severe headpain, vision problems etc.

So it looks like my Fibromyalgia care is now in the Rhemologist Doctor Hepburn's hands except for some other symptoms etc bladder problems, sleep issues etc which are in the appropriate department hands.