Lots going on

I have recieved a letter from the other hospital which my GP wrote to saying that i have been accepted by the pain clinic there, however the appointment is not till the end of January 2009 which is a little while away yet.

I am continuing to reduce the Amitriptaline down but due to the pain i am having quite a few sleepless nights and i am becoming edgy in the day; the light is becoming more difficult to deal with and i am having to spend more time in bed and i am becoming more of a recluse. Simon is even having to record tv shows onto dvd (And wiping them after i have watched them) because i am too tired to watch them with him and also our main tv is to bright. So i am having to watch them on my laptop which i can reduce the brightness down quite a bit and also i can watch them in bed.

Once i have reduced the Amitriptaline i can start the Gabapentin and see if that helps my muscles. My GP said that i dont have to come off of the amitriptaline altogether but i would like to as it is one less drug in my system but it depends whether or not i can adapt/cope with the symptoms of the headpain; admittedly most of the symptoms are blocked by the Topiramate but we will have to see what happens

The Hydrotherapy pool is being resurfaced; i was told this was going to take two weeks at at the time we were told this was happening we arranged another appointment however it has now been 5 weeks since i had my last Hydro session. On the NHS you only get 6 sessions and i am pretty certain that after the 5 week break i have now had that the work we did in the previous 2 sessions has now gone and that any muscle tone will have to be worked back up again but i only have 4 sessions left! After the 4 sessions i have left i will be going back to physiotherapy.

My hands and legs are still hurting alot, Simon is still having to sleep in the spare bedroom quite a bit for fear of touching me the night or bumping into me. I need to contact the Occupational Therapist again to see if they can give advice about a few items around the home to help.I am still struggling with holding knives and forks but tend to use a spoon now as its easier to use one item rather than too. Luckily if we do go out to eat around friends/family etc they understand so it has become less embarrassing but i still find it a little so especially if i have to get Simon to cut up my food.

I have had a few falls over the last few weeks and i am having to use the crutches around the house more, i use the crutches all the time when i go out, but not all the time at home as i use the walls for support occasionally.

My GP when i saw her last week advised me she had completed the DLA form and sent it back along with reports from all my consultants, several days ago i called the DLA and they told me they had recieved it and were looking at my case so hopefully i should get a result soon. *Crosses Fingers*

So with having to spend more time in bed because of the pain and Simon having to sleep in a different room alot of the time i am feeling a little isolated but i suppose thats what happens with fibromyalgia. Our Cat Timmy gives me some comfort its amazing home comforting animals can be.

I am trying to keep my head up and not let it get me depressed i think it gets Simon down if he sees me low which in turn if i see him low makes me feel down. We try to do what we can to keep things as "normal" as we can he takes me for drives after dark so i can get fresh air and i go see my parents and my sisters and my niece and nephews. I have learnt not to let the fibromyalgia beat me. Before had fibro i was on antidepressants for various reasons and the amitriptaline although i use it for pain is an antidepressant, i am looking forward to coming off of it (or being greatly reduced) for the antidepressant factor.