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Thursday, 4 June 2009

WoW what a week

Its been one of the busiest weeks i have had in along time so much has been going on.

Tuesday i had a doctors appointment and had the results back from my Vitamin D level tests the results werent good, i have been on 2 Adcal tablets (800iu) a day for about 6 months now and my vitamin D levels still arent improving much, even apparently after we went on holiday to Cyprus and i spent hours and hours each day in the sun still didnt seem to make any difference. So my Gp descided that i should have a Vitamin D injection (300,000 iu) and see if that makes any difference. I have to have my blood tested in two months also having my thyroid tested to see if my increased Levothyroxine is helping. Its possible that the Vitamin D injections may need to be a regular thing every 6 months or so. I had the injection on thursday by the nurse.

Wednesday i had an appointment with the Sleep Clinic as i havent been sleeping that well.. well to rephrase that i have been sleeping too well.. some days 12-15 hours.. i have had the hose checked on my CPAP machine and on Wednesday the Sleep Nurse put my pressure up to 15, she also told me to keep an eye to make sure that the machine mask isnt leaking but i am always careful with that anyway.

Thursday i had an appointment with the social worker, i have been waiting ages to hear back from the social worker RE the situation about whats going to happen about a carer,she told me she had looked through my report i had written recently about what is important to me reguarding my care etc and was happy with that, and that Social Services had met up, come up with a very good figure that would allow the level of care i needed, someone to come help me get up in the morning, prepare breakfast, help me get washed, dressed, make sure i have enough drink till lunchtime, come back at lunchtime and prepare lunch and then make sure i have enough drink till my fiance comes home. She also said that there was enough money so that i would have a carer if i wanted to go out with a carer down town or down the beach or something one day a week. Also that the agency would be starting this Monday!!! i was totally taken aback and amazed after waiting all of this time for everything to happen so fast is amazing. I am waiting a phone call today (friday) from the agency to discuss details about my care etc what i require, what time i want someone to come etc.

Also thursday i had a phone call from "Wheelchair Services" giving me an appointment on the 1st of July, another thing which is starting to fall into place.. everything seems to be happening all at once its overwhelming, i just wish it had happened sooner but at least it is happening, then again i dont know how long the whole process will take but at least the ball is rolling.

Wow what a week... I have an appointment next week too for the electro nerve ending test and also an appointment with an financial adviser to discuss my benefits and they also check to see if you can contribute towards your care, apparently this is based soley on my incomings... my benefits. I also have an appointment with my Occupational Therapist next week and she is coming to measure the bathroom for the wet room. So another busy week coming up!

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