Not much has been happening; to be honest it probally has, but time has been going so fast that i feel that i have been taken out of time and that i am just watching it pass me by.
The Morphine patches do seem to be helping overall but the pain does seem to be getting more intense, when it does get bad i try to stand up if i am sitting down, or sit down if i am standing up and that does seem to help a little but not for very long.
My Gp has refered me to see the Rhemotology Dept, although i was originally diagnosed by the neurologist it wasnt technically his dept so i have to see a Rhemotolgist and Fibromyalgia is there department and i have to be diagnosed again and homefully things will move on a little bit more. The only thing that worries me after all of this is what if they dont think it is Fibromyalgia, i truely believe it is fibro it does seem to fit the pattern and seems to have all the symptoms but apparently some Rhemotologists dont believe that Fibromyalgia exists, so instead of taking several steps forward i could end taking a million steps back.
I have been suffering from Insomnia another common ailment of Fibro and now my sleep pattern is totally screwed up i want to sleep in the daytime and be awake in the night time, it has its advantages and distadvantages. I am still very restless at night time and it means that if i slept the same time as Simon then i would keep him awake at night time and his quality of sleep would not be good so he would be tired when he would have to go to work the next day.
I have also been sleeping alot generally i dont know if this is a mixture of my medications or the morphine or just the fibro generally but i think this one of the reasons i am feeling that life is passing me by so quickily.
The company that i work for came to my house several weeks ago to discuss my current work status as i have not worked since july 2007 they said i have to attend an Occupational Health meeting and that then i will have to attend a formal meeting to discuss whether i will be let go. However they had scheduled the Occ Health meeting for only two or three days time from the initial meeting and what with Simon working so many hours and unable to get time off work at such short notice and problems with my short term memory it wasnt possible to attend the Occ Health meeting, they played games with us a little but in the end they agreed to make the appointment for a different day. We got another date in a letter in the post however Simon has a course that day so he is going to have to give them a call and rearrange it.
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