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Friday, 6 June 2008

At last... i see a Rheumatologist

In Decemeber i saw a Neurologist who diagnosed me with Fibromyalgia and i have also seen the Neurologist nurse not so long ago.

My General Doctor (GP) has been writing to my Neurologist to get a copy of the Diagnosis but he refused to send a copy of it, maybe because technically he shouldnt had diagnosed me as Fibromyalgia is not his field i dont know.. But now my Neurologist has retired and i have passed onto another Neurologist.

Now my General Doctor has her hands tied and is limited on how much she can help me without seeing a copy of the diagnosis sheet also a specialist about fibromyalgia knows more about the medications and knows how to help me.

soooo she refered me to the Rheumatologist the appointment took about 6-8 weeks after she refered me to come through but it did come through and i saw him on Tuesday 3rd June.

He was very nice and started by asking what medicines i was on, then a list of conditions i had and what problems i had. Then i had to go sit on a couch whilst he prodded and poked me which was quite uncomfortable but i tried not to complain too much at the time as i knew he was only doing his job. He did my blood pressure and listed to my heart and wanted me to try and move my arms into certain positions. And then we went back into his office. He said it was defiently Fibromyalgia, which of course we knew already but i did have a little niggling feeling maybe it was something as i thought maybe the Neurologist before didnt know what he was talking about.

We talked about medications he could put me on but my Amitriptalyne would need to come down first. He is also going to refer me for Physio.

I am due to see him again in about 4 months but i left there feeling good hes going to write to my GP and i have an appointment to see her in 2 weeks by which time she should have recieved the letter. Hopefully after that i may be able to apply for Disablity Living Allowance.

Feels like i am getting somewhere now.

Also we are in the the middle of buying a house, the main reasons are because we are renting at the moment and we wanting to buy so that we can put in adaptations, this months Fibro Group meeting has a Occupational Health person coming to talk about adaptations so maybe we can get some numbers and help from it.

As i said... it feels like i am getting somewhere.

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