Lots going on

Lots of things going on...

The amitriptilyne has been reduced to 150mg i was wrong before its weekily periods that its being changed for so it was 175mg and 150mg for a week and now i am 150mg for 1 week and then 150mg and 125mg for 1 week and then 125mg for one week etc. There doesnt seem to be any problems with the lowering of the amitriptilyne so far which is good. My headaches were getting a little bit worse before it was being reduced but Doctor Adams has put my Topiramate back up to 200mg as it was lowered to 150mg previously.

I have now had two hydrotherapy sessions and it seems to be going well, the first sessio was quite painful i suppose as my legs were not used to being moved and exercised with the hydro exercises. I was in quite alot of pain afterwards; aching but the therapist said that this is normal and will happen for the first few sesssions. The hydro is also making me more sleepy so i am needing to rest more in the week before and after the sessions. Luckily Simon is able to get time off of work to take me so he is able to help me undress and dress myself. The hydro department did offer someone to help me but i didnt really like this idea and as Simon was there to take me and pick me up as the sessions only last half an hour he was more than willing to help. The second session went okay, i was a little weaker as i had my last wisdom tooth out the day before.

The exercises seemed a little easier. I have been struggling a little to get in and out of the hydrotherapy pool as i am not allowed to use my crutches because the bottom has touched outside and would therefore be unhygienic so i have to walk the steps in and out holding onto a rail. Getting out of the pool is more difficult as i am slippery from the water and i have nearly fallen several times but i do not wish to use the hoist. The pool is now closed for two/three weeks to resurface part of the pool. I have four more sessions left as only six sessions are available on the NHS after that i will go back and see the Physiotherapist hopefully with more movement in my legs and knees.

One of the ladies that is in my hydrotherapy group also has fibromyalgia; she is the same age as me and has not met anyone before with the condition, i have also advised her of the website and local group.

I have called the DLA (Disability Living Allowance) people to see why i have not recieved any news of my claim, they said they have written to my Rhemotologist and not recieved a reply so they have now written to my GP and are waiting on her responce.

I have spoken Doctor Hepburns secretary and they say they have not recieved a letter from the DLA, they have however written to me stating a lot of information RE my illness which i have kept. IF i am refused DLA i will use this letter in my appeal.

I am a little worried about my GP writing to the DLA only because it was because of her letter previously that i was refused in January. Hopefully this time i will not be. Otherwise i will appeal. My doctor can be very funny; when i am there with Simon she seems to be fine when i am there alone she is different and very cold.

She also should have recieved a copy of the letter from Doctor Hepburn which should be useful when filling out the form i have called the surgery several times to see if she has gotten it but gave up after calling every day for two weeks it should be there by now!

The pain in my legs and my hands has increasingly been getting worse and i have been getting weaker it is slowly getting more and more difficult for me to do things. Several times whilst walking my legs have given way and i have tripped or fallen to the floor altogether. It is worrying me i am really pinning my hopes on the hydro and physio.

Tomorrow i have the fibromyalgia group in Worthing i am looking forward to that. Also i have made some friends via facebook with fibromyalgia.