I havent written for a while as not much has been going on with my fibromyalgia, my hands have slowly been getting worse but not much else really.
I have recently bought some adaptations from a website http://www.helptheagedshop.co.uk/ okay it looks bad but they have alot of things that can help you if you are disabled, the products arent for the elderly its just the money that goes towards the charity help the aged. I bought several items that should make life a little easier and recommend the website as they were much cheaper on the products but it is also a good cause.
I saw my Asthma nurse at my local hospital, okay it has nothing to do with fibromyalgia but they have adaptations to help with things too, i mentioned that with my hands getting worse that i was struggling pressing the inhalors she mentioned several options including inhalors that pumped themselves but after trying a few of the options i found something i liked called a "Haleraid" it is a handle device that goes over the inhalor and is like a handle that you press towards the inhalor and it pumps it. Which is much easier if you have problems with your hands.
After seeing the Rhemotologist in may and being refered to physiotherapy i finally had my first session today (well tuesday as its just gone midnight) for my knees only though at the moment. He asked lots of questions about how much pain i was in and asked what medication i was on (good job Simon was there) and said that i didnt have much muscle around my knees and that the problem with my legs was degenerative, which scared me as this may mean the possibility of a knee replacement or being in a wheelchair in the future.
He also said that as i am unable to move my legs much at the moment he would not be able to help me much at this time and he is refering my for hydrotherapy at the local hospital. I have to call to make an appointment in a few days once he has transferred my notes. After 6 or so sessions he will see me again and then we can start doing some physio too. He did give me some exercises to try and start some movement which i will start doing.
I have an appointment tomorrow (being wednesday) with my Rhemotologist hopefully he will put me on a new tablet to help with my muscle movement.However it is possible he may not as i was to try and reduce a tablet i was already on but i was unable to lower the dosage much as the tablet i was already on is a painkiller for my constant migraine and i was unable to withstand the pain when it was lowered much.
Will probally write again tomorrow after seeing the Rhemotologist.
Still havent heard from the Disability Living Allowance people : (
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