Today i went to the Rhemotologist, it was worth waiting the extra time even though i let him know i was unhappy about waiting it.
Had a full over fibromyalgia "joint" examination.. with a few extras which i assume were hyper-mobility.. sort of.. lifting my arm.. squeezing joints and bones.. does it hurt when i do this.. kinda thing.. he told me i have gone downhill alot since i last saw him, i was already aware of this.. technically fibromyalgia is not sup-post to be degenerative condition but alot of people do go downhill.. ask most of the people who suffer from it.. its just a label they put on it. Also with the hyper-mobility i suppose that doesn't help.
I was all prepared when i saw him came with a page of writing i called "situation summary" which explained what had been going on.. eg physio, medication, General Doctor, Rhemotologist Occupational Therapist etc gave a copy to him... which answered alot of his "questions" which as they do they always ask questions and as a fibro sufferer i remember about 10% of the answers! It also had about test results etc so he could be up to date as it had been 9 months since i had seen him.
I told him about my leg as this was the thing that was worrying me most, he said it was a trapped nerve but as i was in so much pain with it he gave me cortisone injection in the top of my thigh.. he said it should help with the inflammation and pain and would last anytime from 6 weeks to 6 months.. he also gave me one in my right wrist.. my wrist is still hurting a bit from the injection but my thigh seems okay at the moment.. its night time when i am sleeping the actual pain tends to happen most so we will find out tonight if its helping.
I also told him my migraine is still there and is still very bad, he said he will refer me to a "headache doctor" some form of neurologist to see if some form of medication can be found to help it, i am currently on topiramate and it is only helping very very slightly.
I should be going back to see him in 3 months fingers crossed if my appointment isn't canceled.. he asked for one 3 months away and the receptionist said they were full then however she called my Rhemotologist on the phone (in the next office!!) and he said he defiantly wanted to see me in 3 months.. making it sound i was important so i shouldn't get bumped again! so i am on a backup list.. and should get a letter in the post as we couldn't make an appointment there an then.
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