waiting..

Not much has happened recently i seem to be waiting for things... I am currently waiting for my Rhemology appointment next week and hoping that he is not going to cancel the pain in my leg that i want to see him about is still there and very sharp... it also burns at night and keeps me awake..i also want to speak to him about the hypermobility as i haven't had a chance to since he "diagnosed" me via the Rhemy OT.I had a blood test last week for my thyroid and Vitamin D but the chances are the results wont be in, in time for my Rhemy appointment as it usually takes three weeks.

I am also still waiting for my Working Splints with thumb guards from my Rhemy OT its been about 6 or so weeks now i need to ring her in a week and see how the order is progressing it has taken along time.. i rang her two weeks ago and she said there was no news.. it seems to be rather pathetic really but i cant really blame the Rhemy OT as she has been brilliant to me.

I have been having physiotherapy but it doesnt seem to be helping me that much i have been doing the exercises and they just get me very tired and i dont seem to be getting anywhere after about 4 sessions we have left it at if i want another appointment in the next few months for me to call her, i don't know if i will or not i just seem to be pulling muscles.

I am also waiting for a USB Medical Alert necklace which i ordered online which is coming from the USA, I think this is an amazing idea as you can store all your doctors letters, xray's, scans etc on the USB device and then if you end up being rushed into hospital they can access all the information; this is especially good if you have a condition that isn't that well known. The information is password protected and the necklace is engraved with your basic information eg name, date of birth, emergency phone number. The USB device is password protected and i assume you give the password to your next of kin (eg the person whose emergency phone number is on the device) The website i ordered it from is http://www.universalmedicalid.co.uk/ the only disadvantage because its from the USA it can take anything up to a month!!

The other thing i have bought which is brilliant especially as i have alot of problems with my hands some foam which you can put on cutlery,pens, toothbrushes, paintbrushes, etc etc to help you hold things if you have problems with your grip which is good if you have problems with fibro or arthritis. http://www.livingmadeeasy.org.uk/supplier.php?supplier_id=0000580&product_id=0005522 is where i found it the cheapest.. i bought a NDSi XL and it worked on the pen that came with that and enabled me to be able to play games on the Nintendo DS again! and do painting.. lol i sound like an advert.. but i only want to spread the word of things i have found that have helped me.

I have also got an appointment with wheelchair services as i have asked to see them as i have had problems with my wheelchair; on my current one i have a "soft" back made from material but when i sit in it all day like when i do at the day center i go to i end up with a very sore back and also when my backpack is on the back of my wheelchair if often hits me in the back so we are going to ask if they can replace it. Also my current wheelchair is very wide and we are going to ask if they can get me a smaller one as this one has problems going through doors..

The local fibromyalgia group i have been helping with and attending seems to be moving forward in leaps and bounds they are currently setting up a website although i dont know whether to post it on here as it would show where it is held.. at least it is moving forward though.. yay.