I am currently waiting for the housing officer to put a disabled logo on OUR parking space, they really made me jump through hoops for that one, i had to send in a copy of my Blue Badge, send in a copy of our deeds to our flat proving our parking space, also a copy of my DLA letter proving my disability and finally a letter from my GP saying why a disabled space would be beneficial to me. The main reason is that well in our car park we all have allocated parking but no one actually bothers following it. Our space is right next to the front door of the block which is brillant because of course with my fibro i cant walk far but of course every other person wants to park there too! and we end up parking really far away and it ends up killing me walking that far and also recently somehow the car park has been full and we have had to park on the road! I am not sure how the car park has been full as half the people dont actually have cars, but i think that some people actually have two which is a little out of line! Well when they finally get around to painting the logo it will help alot as long as we dont get other people parking in it!
We contacted the Occupational Therapist and they have brought some equipment around, a surround for the toilet (which isnt really that great as it tips when you stand up!), a bath seat, raisers for the sofa chair i sit in in the lounge (which are brilliant but now its higher my fiance keeps wanting to sit in it :P) and also a special stool which is really handy for when i am washing and brushing my hair in the bathroom. I am also on the waiting list to see the "actual" Occupational Therapist which is about four months and they will be able to give me advice and help me with some other items etc which will be useful.
I also got my free prescription card which means i will no longer have to pay for prescriptions based on the fact i can not go out alone and can not collect my presciptions without someone with me or collect them.
Over christmas i took some photos with my digital camera but my hands have become very shakey with the fibro and almost every picture came out blurry, a friend recommended getting a new camera with anti shake and decided to get the Canon A570 ( http://www.kenrockwell.com/canon/compacts/a570.htm ) which takes really amazing pictures as shown by the above photo
My legs and hands are still continuing to get worse , its getting harder for me to grip i have to put alot more effort into gripping and my hands keep spontaniously releasing when i am holding onto items so i am dropping things like forks, crutches etc which is not good. I have fallen several times over the last week, four to be exact it is happening more often. I wasnt using my crutches around the house all the time but leaning on the walls but now i am having to rely on the crutches all the time both at home and outside. But with my hands getting worse i am struggling to hold them, two of the falls this week have been with the crutches both a mixture of my legs being bad and also my hands struggling. The pain seems to be increasing however the numbness seems to be going a little.
I had my fifth hydrotherapy session this week it is suppost to be helping but i am finding it harder and harder each time and afterwards it hurts more and more both in and out of the pool. I take pain killers before i start but i am worried about taking too much as i dont want to become to drowsy in the pool. This week my hands and legs became so weak and painful by the end of the 30 minute session i was barely able to stand in the water whilst holding onto the side and it was obvious to both myself and the physiotherapist/hydrotherapist that i was not going to be able to walk up the steps out of the pool holding onto the rails (something i am usually able to do with great difficultly and very slowly but i am usually able to just about to maintain my diginity) but this time i was too weak and in too much pain. We agreed, myself somewhat begrudgingly that it was safer if i was hoisted from the pool. They did their best to maintain my dignity but i truely felt that i had given up and that i was broken and defeated.
At the rate my fibro seems to be getting worse i dont know what is going to happen i have one more session left and i hope and pray that i dont have to be hoisted again as it was most unpleasant but after that session i go back to the physiotherapist. I am fed up with the pain, i am fed up with hitting the floor and i am fed up with the bruises i dont think i could be more frustrated if i tried i feel truely defeated and hang my head like a wounded animal!
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